Mid and South Essex ICB is proud to host a Maternity and Neonatal Independent Senior Advocate (MNISA) as part of a new NHS England pilot project. The MNISA role aims to provide independent guidance and support to women and families affected by a significant health complication or bereavement following an episode of maternity or neonatal care, and to use this feedback to bring about system change and improvement.
The MNISA for Mid and South Essex ICB is Sarah. Sarah is a registered midwife, who has been working in maternity and neonatal services since 1999, in a different part of the country. She has extensive clinical experience, and a sound understanding of the pathways that NHS services follow when there is an unexpected outcome and people are harmed. Sarah has experience of working alongside senior healthcare leaders, and is committed to making sure that services listen to families and really learn from their insights.
Sarah is here to listen to women/birthing people and their families to navigate some of the complex investigation processes which take place when an unexpected significant health event or a death has occurred. She can also;
- help families to obtain the information that they need to understand more about what happened to them or to their baby
- explain difficult terminology (or find someone who can explain this for them)
- attend meetings with professionals/inquests with them (or liaise with professionals on their behalf if they don’t feel able to do so themselves)
- help families to convey their main worries, concerns and feedback to professionals and Trust/ICB boards, so that the impact of these can be acknowledged for them and used to make changes that may help another woman, person, baby or family in the future
Sarah can support a formal referral if a woman/birthing person or baby have received maternity/neonatal care at any of the three maternity and/or neonatal units within Mid and South Essex and:-
- their baby was stillborn, after 24 weeks of pregnancy
- their baby died within 28 days of birth
- their baby was diagnosed with (or suspected to have) a brain injury
- they required a hysterectomy (removal of the womb) during childbirth or within 6 weeks of childbirth.
- they required transfer to critical care (high dependency/intensive care) during pregnancy/childbirth
- the woman/birthing person died following pregnancy/childbirth
We recognise that families may be affected by other things that are equally important that may not be included in the pilot project criteria. Whilst Sarah would not be able to support them on an ongoing basis, she can signpost families to organisations that can offer help and support. If you are unsure, please do get in touch. The MNVP are also able to help families to share feedback related to any aspect of maternity or neonatal care. You can find out more at (insert link to MNVP page please).
We understand that families may be worried about asking questions/raising concerns about their care. Sarah is not employed by the hospital trust and has not worked or lived locally. Her employment is hosted by the ICB, to keep her independent from the organisations that may have provided maternity or neonatal care to the family.